As most of you are aware of our daughter Brooklynn was diagnosed with Spinal Muscular Atrophy (SMA), February 17, 2009 just 13 days before her 1st birthday.

Well just to let you all know we have joined forces with our local Families of SMA chapter. On October 23, 2010 at 9 a.m. our local FSMA chapter is hosting our 2nd Annual Walk-N-Roll at Fort Desodo park and we would really welcome your support in my mission of helping to find a treatment and cure for SMA.

Last year was our first time at the Walk-N-Roll and it was only the 3 of us and we vowed to one another that we were going to have one of the biggest teams this year. So PLEASE if we could to take a moment of your time to visit our fundraising page and make a donation. It is very easy, and completely secure. You can donate by credit card and receive a record of your donation via email for tax purposes.

All donations made are sent directly to Families of SMA and are used to provide funding for research and patient support. Please join us in supporting Families of SMA to find a treatment and cure for SMA!

Families of SMA makes a difference every day because of your support. Together, in 2010, we will accomplish the following:

-Expand our investment in critical Spinal Muscular Atrophy research to grow the drug and clinical pipeline to increase our likelihood of finding a treatment and cure.

-Provide direct support to hundreds of families with newly diagnosed children by sending them packets of important information and pieces of critical equipment. -Provide services to more than 70% of SMA families in the United States. -

Host the nation's largest gathering of those affected by SMA and the researchers working towards a cure at the 2010 Annual SMA Conference, bringing together hundreds of families and researchers from around the world to share ideas and hope for the future.

Thank You for your time and Support

The Santos Family