Brooklynn was diagnosed with a relatively unknown genetic neuromuscular disease called Spinal Muscular Atrophy (SMA) on February 17, 2009; seventeen days before her first birthday. Spinal Muscular Atrophy is the leading genetic killer of children under two. The neuromuscular disease causes a wasting of the muscles, robbing its victims of the ability to run, walk, crawl, play and, in many cases, even breathe or swallow. Although there is no treatment or cure, there are ways to improve and even extend Brooklynn’s quality of life, however, the equipment, care and medication that she will need are very expensive and we have limited resources. 

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